Justine Barkas

Specialist Huntington's Disease Adviser for the SW
What is Huntington's Disease

Justine Barkas

Individual
3 connections
Website

About

Specialist Huntington's Disease Adviser for the SW

I am the new adviser for the Huntington's Disease Association for Devon, Cornwall, The Isles of Scilly & Jersey. 
 
My role as the HD Adviser for the area is to:
 
Provide advice, emotional support & a listening ear for anyone affected by Huntington's. (We understand that whole families may need support).
 
Help coordinate support with medical, health and social care professionals.
 
Make referrals into specialist Huntington's disease clinics.
 
Advocate for the person with Huntington's disease to get the best support.
 
Educate medical, health and social care professionals, meaning better diagnosis and on-going care.
 
Explain what branch support and carers groups are available (face to face & online) which I also help to host or will attend.
 
Provide information resources on symptoms and how to manage them.
Connect younger family members with our Youth Support Worker, Jack who covers the SW.
 
Provide information about planning for the future and support for sensitive end of life care.
 
Our website is a very useful resource with a lot of advice, information and webinars : www.hda.org.uk, there is also a message board on the website where people can post questions (anonymously) and receive peer support. 
 
 
Please do get in contact if you or anyone in your family is affected by HD and needs support.
 
 
Tel: 07749 493 566
 
Helpline: 0151 331 5444
I am the new adviser for the Huntington's Disease Association for Devon, Cornwall, The Isles of Scilly & Jersey.    My role as the HD Adviser for the area is to:   Provide advice, emotional support & a listening ear for anyone affected by Huntington's. (We understand that whole families may need support).   Help coordinate support with medical, health and social care professionals.   Make referrals into specialist Huntington's disease...

Selected tags

Select location
All Cornwall
Health conditions
Addiction Alzheimers disease Amputee Anxiety & depression Arthritis Brain injury Cancer Coronavirus Dementia Diabetes Downs syndrome Epilepsy Fibromyalgia Flu & Pneumonia Hearing loss Heart disease HIV Learning disabilities Lung condition Mental health Multiple sclerosis Obesity OCD Osteoporosis Parkinsons Respiratory disease Sight loss Stroke
 

Add new activity

Eligibility criteria

Please check you meet our simple eligibility criteria. Thank you.
What listings do we accept?

Add a listing

Promote your ongoing service, group or community activity.

Add a volunteering opportunity

Recruit volunteers by sharing your opportunity.

Add an event

Promote one-off or scheduled events with set dates.

Would you like to save your progress?


Note: Saving as a draft means your activity will be available for you to edit in your dashboard.​

Selecting delete marks your activity as deleted in your dashboard.​

Please sign in or register

Sign in Register

Delete my account

Selecting this option will permanently delete your account data. You will no longer have access to your account or any associated information.

If you want to request a copy of your data, please wait until you receive your data before selecting this option.

Delete my account

Connect with __XXX__

Search Cornwall Link

Activities

Find activities and services from members in your community.

Search activities

Members

Find people and organisations who are using Cornwall Link

Search members

Guides

Find information in the Cornwall Link guides.

Search guides

X hours given for:
Title

Invite to circle

Share the magic link:

Anyone who follows this link will auto-magically join your circle!

Or share on WhatsApp

Share the auto-magic link in a WhatsApp group.

Cookies on Cornwall Link

We use cookies to give you the best online experience.

Select 'Accept all' to agree to all cookies.

Some cookies are essential. Others can be controlled in your cookie preferences.